I will honor Christmas in my heart
and try to keep it all the year.
|Grateful the snow didn't pack into snowballs|
|Snow is soooo much better than the sandbox|
|Looking more like a spring fairy than a snow bunny|
|Max loving life and Alexandra hating the snow on her bare hands when she fell|
|Super Sooner and Superman|
|Alexandra is very proud of the house they built|
|Martha Stewart, watch out.|
|eating fudge by the Christmas tree|
|butterfly dress by Alexander McQueen|
|photo from capitol couture.pn|
Photo snapped in between Jesse's happy smiles, but Alecia provided hers!
"I try so hard to not be discouraged, to keep trusting that He will provide. He has thus far. Man, have we ever been a part of some wonderful blessings and miracles.... It's getting easier to let go and for me to quit trying to be "the one in charge," because this life isn't mine. It's HIS. I try to remain positive and try to help others who become sick and feel the way I have.
This disease, Trigeminal Neuralgia (where a blood vessel or artery wraps around a portion of the Trigeminal Nerve, rubbing away the protective sheath surrounding the nerve, causing intense pain each time the vessel pulses or moves), takes away so much of who the person once was.
I've had two brain surgeries to treat this disease. I had the first, a MicroVascular Decompression, in September 2009. Eight months after that surgery took place, it failed. I had a second brain surgery in June 2010 to sever the sensory portion of the nerve.
You almost live in a cocoon, a sort of hermit, scared to death that another 'attack' will hit at any time. These attacks have been described as feeling like being struck in the head by a lightning bolt, stabbed by an ice pick, struck in the head by a cattle prod, or biting onto a live, active electric wire. Through research, actual case studies and surgeries that have taken place recently among those like me who have had the sensory portion of the Trigeminal Nerve severed, we now know that those sensory fibers can in fact regenerate and reconnect to each other, causing that pain to resurface.
Unfortunately, exactly that has happened, and I'll have a third brain surgery to cut the entire Motor Cortex and Sensory portion of the nerve, resulting in what looks like a stroke-type of condition on my face; whereby, I will have no ability to smile, no ability to chew or to open my mouth, but I'll take that over pain like this any day."
|badge of courage|
|Jesse posing with one of his many PICC lines|
"Though my family and I have struggled mightily all along, I've never given up HOPE. If you give up hope--h-o-p-e--then you have nothing. It's my daily goal to give at least one person a semblance of HOPE, to let them know that there is an end to what they're going through."
|Allegiant, the third book in the series, arrived Tuesday. They're incredible. Movie arrives in March.|
"Becoming fearless isn't the point. That's impossible. It's learning how to control your fear, and how to be free from it." --Veronica Roth, Divergent
|Homecoming Court 1993|
|Headed to Nationals, baby!|
|Polariod taken during opening night. That look on my face? Acting. The dress? Sewn on.|
|10 year reunion. Can you find me?|
|This photo was all over Facebook. I'll give photo credit when someone fesses up.|
|Jennifer McMurrain's Mac Daddy Macaroni Salad|
|Dee Dee Chumley's Black Bean and Hominy Salad|
|Brandi Barnett's Tortellini Salad|
|Lisa Marotta's Mama Mia Pasta Salad|
|Kelly Bristow's Mississippi Cornbread Salad|
|Heather Davis' Oh Crap! I Forgot! Salad|
|Tom Barczak's Summer Chicken Salad|
|Shel Harrington's Peach Fluff|
|Malena Lott's Avocado Feta Tomato Salad|
|Lisa Czlonka's Kalua Pig|
|Mari Farthing's Orzo Veggie Salad|
|Heather Ezell's Caprese Salad|